Living the Invisible After diagnosis, we spent a few years getting my sons medication right. He was having daily seizures and so he was on anti-seizure medication for a few years, some worked for a time and then they would stop so his neurologist team would increase the dose or add new medications. There was a time when he was on three anti-seizure meds twice a day, and these still did not work. When my son started preschool he was drugged out, he was unable to retain information or learn. We were at the hospital emergency department every other day, and it was at one of these visits that I suggested to the team what would happen if we took him off all medication and just carried an emergency medication? Luckily one of the neurologists agreed and decided to give it a go. He has not been on anti-seizure medication since. We carry emergency medication where ever he goes, in case, I know we are lucky, other children are not as lucky. He still has seizures however the most common type tends to be absent seizures which are hard to medicate. We are very lucky that the other types of […]